Age-related macular degeneration (AMD) is the most frequent cause for severe visual loss in people older than 50 years of age. Treatment possibilities are limited. Thererfore we perform a family study with patients suffering from age-related macular degeneration to analyze early stages of AMD and their progression. This study is part of the Priority Research Program fincanced by the German Research Authority (Deutsche Forschungsgemeinschaft)
Inherited retinal disease are less frequently diagnosed as they are estimated to occur (about 1:4000). One reason is most likely the complexity of multiple different disorders with variable clinical appearance and progression. To date, therapeutical options are very limited. Recent research, however, gives hope that in near future better treatment abilities will develope and that in some of these disorders progression may be stopped or markedly delayed. For better understanding of these retinal diseases and to build the basis for future treatment, detailed opthalmologic and molecular genetic examination of many patients and their family members is mandatory. In addition, during follow-up examinations we learn about the natural progression - which is important for comparison with future treatment.
We are interested to examine patients with inherited retinal dystrophies and to provide specific counselling. Examination results will be evaluated scientificly in an anonymous way and published. They will also result in the improvement of the web-information on this page.
We are in close cooperation with patient self help groups, especially Pro Retina Germany e.V. and the network Rare Retinal degenerations supported by the German Ministry of Health.